We believe it is crucial for advancing understanding of behaviour and mental health to share the valuable E-Risk data with researchers across the world. We do this in a responsible manner that observes the Five Safes principles.
Through the years, data have been collected about many different topics, including mental health, obesity, asthma, school performance, criminal offending, violence victimisation, neighbourhood conditions, the family environment, and also biomarkers to investigate inflammation, gene expression, epigenetic DNA methylation, polygenic scores, telomeres, and neuropsychological functions. Currently data are available to access for the assessments conducted at ages 5, 7, 10, 12 and 18 years. Note, we have recently received funding from the MRC to collect a new wave of data when the twins are aged 30 (in 2024-2025) and this data will become available for researchers to access by the end of February 2027.
Information about the mental health measures available for E-Risk twins at different ages is provided in the Catalogue of Mental Health Measures (part of DATAMIND): https://www.cataloguementalhealth.ac.uk/?content=study&studyid=ERisk For detailed information about the other measures available, please contact the E-Risk Study team on firstname.lastname@example.org
E-Risk data is free to access by researchers from all over the world (and students via their academic supervisor) who are based at universities or research organisations. We operate a managed access process to protect the privacy of our participants and the integrity of our study. Our data sharing protocol observes the Five Safes principles: the data is safe (only non-identifiable data is shared); the projects utilising the data are safe (E-Risk data owners have to approve projects and these must be for the public good); the people using the data are safe (must be bona fide researchers based at universities or research organisations and academic supervisors must sponsor their students to apply, plus we require all applicants to attest that they have undertaken appropriate ethical data handling training); the setting in which data is used is safe (data is sent securely in encrypted files and we mandate that users must have installed appropriate controls on their computers and cannot share the data); and the outputs are safe (the E-Risk PI must approve all outputs to ensure they are non-disclosive and adhere with funder requirements).
Below is an overview of the process for accessing the existing E-Risk data. Please read the data sharing protocol (available to download below) which provides full details of how to obtain access to this data and the procedures that must be adhered to when using the data and publishing your subsequent findings.
If you have any questions at any point during the process, then please email the E-Risk Study team on email@example.com and we will be more than happy to help.
* The E-Risk data manager will aim to provide a dataset for the applicant’s project within 1 month of the concept paper being approved, but this will increase to within 2 months during a data collection phase as this is a particularly busy period for this member of staff.
Please read the data sharing protocol: View PDF
The concept paper form is available here: Download Form